Sunday, November 18, 2018

Where In The World Am I?

I've been conflicted about continuing this blog. As you can see I have not written much in the last little while. I still like this place I've created in cyberspace. It represents so much of who I am and where I've been since moving to my hometown. 

My life, actually my life along with my husband's and daughter's was forever changed in 2017. I've always wanted this space to be a "happy" space. Or at least more happy than sad. Our turning point came in 2017 when my husband clearly needed full-time care. I wanted to be his caregiver. I did not want to pay someone else to take care of him. It was clear that time was precious. It was precious because each day he lost more. Each day he was fighting to stay cognizant. Each day his understanding of what was happening changed. Each day he endured confusion, sadness, and fear as he tried to navigate his life without a compass or a map. I am confident that I'm not overstating when I say that I am the only person that could help ease his fear. Help bring him fleeting moments of joy. 

I didn't want to miss any of the time that Jordan was still Jordan. 

As happens with this disease, it progressed to the point that he needed more than my care. He needs a safe place. A place where he has round the clock care. A place where all of his medical needs are attended to daily. And so our lives changed again. One with me being the full-time caregiver to me being "only" his wife, and a helpless wife at that. 

In 2017, I spent a week in a chair beside Jordan's hospital bed. After getting him medically stabilized, he transitioned to a full-time nursing facility. When I came home, I came home alone. I came home to an apartment that he would never return to. My heart was broken. I wasn't quite sure how my heart even continued beating.  

In 2018, I relocated from Wilmington back to my hometown. I was able to get Jordan admitted to a Veteran's Nursing Home. His facility is in a different town, about 2 hours away from me. But, distance is a small price to pay when I am fully convinced he is getting the best care available. 

This year I moved into an apartment and began officially living alone. I am in an apartment that he will never see. 

All things I never expected. All things I would not have chosen. All things that we mere humans can not control. 

And yet... And yet, my life continues. 

All that to say, that this particular blog is about my life "before". You know? I haven't felt like writing. My life goes on. It is a "new" life. I'm doing what I can to make sure it is a full life. I want to make sure that my life continues to be a life well lived. 

As I move through grief I cannot deny that I am incredibly blessed. 

So, I have not really spent time here in this space I created. But, it is still a space that I treasure. Surprisingly, I still want to write. But I have a different story to tell. I've decided to begin a new blog. I am calling it "Half Time".   If you are curious, come over to the new space. 

Monday, May 28, 2018

You May Ask Yourself, "Well how did I get here?"

As you can see, I have not been active here on the old blog. I plan to change that. Or at least, at this moment, I think I will feel like writing and posting more often.

Part of my hesitation is that I stopped pretty abruptly and haven't had the strength (?) emotional strength, I guess, to fill in the backstory from there to here. I have many "pre-written" posts that I put together as our life was changing. I will probably post those at some point.

Last year, my sweet Jordan's illness began to move incredibly fast. I quit work and moved us to Wilmington to take care of him myself. Wilmington was more affordable and (according to my spreadsheet) we could make it (for a while) on just his disability. Our lovely daughter also lives there and I wanted to give both Jordan and D. the opportunity to spend as much time together as possible.

Sunday, March 18, 2018

Saint Patrick's Day Weekend

Hello. I have had a lot going on...and no energy to write. I actually wasn't sure if I would come back to write. But, here I am.

I decided to come back to wish everyone a Happy Saint Patrick's Day weekend. I love the fun, green celebrations. 

Yesterday I went to the Symphony's Celtic Music Celebration. Not my typical venue. The Symphony promised bagpipes and Irish dancers. I wanted the Irish and Scottish music to transport me to a happy place. It did not.

Saturday, September 16, 2017

Our Alzheimer's Journey ~ 8/17/17

Here is an update from his most recent Dr. appointments. His AZ Psych was hard for both Jordan and me. Jordan does not do well in his Dr. appointments. It's weird...he can be "normal" with me before the appointment. But once we get into the Dr. Office he goes to his "other place". Stress? Is it because we are talking about his condition? I don't know. He did fairly well with his Primary Care Dr. 

But his AZ Psych was not great. When she talked directly to Jordan he mostly spoke gibberish. I don't know if any of you have experienced this. His "gibberish" is real words...but they don't make sense and they don't have context.

Friday, September 15, 2017

Our Alzheimer's Journey ~ 7/26/17

Overall we've had several REALLY good days.  We continue to be seizure free.  The potential side effects of the antipsychotic Rx appear to have subsided. His diabetes is under control. His insulin has been reduced to 10 units (from 42 units a year ago).

He still has bouts of sadness...but it doesn't appear to be as often as before. 

When he does go into his "I'm not here" zone he is more and more difficult to manage. The good news is that it doesn't happen that often.