Remember the Magic 8-Ball? Did you have one? Every once in a while I want to simplify my decision making. A Magic 8-Ball could be just the ticket. --Of course, I'm kidding (sort of).
Monday, May 28, 2018
As you can see, I have not been active here on the old blog. I plan to change that. Or at least, at this moment, I think I will feel like writing and posting more often.
Part of my hesitation is that I stopped pretty abruptly and haven't had the strength (?) emotional strength, I guess, to fill in the backstory from there to here. I have many "pre-written" posts that I put together as our life was changing. I will probably post those at some point.
Last year, my sweet Jordan's illness began to move incredibly fast. I quit work and moved us to Wilmington to take care of him myself. Wilmington was more affordable and (according to my spreadsheet) we could make it (for a while) on just his disability. Our lovely daughter also lives there and I wanted to give both Jordan and D. the opportunity to spend as much time together as possible.
Sunday, March 18, 2018
Hello. I have had a lot going on...and no energy to write. I actually wasn't sure if I would come back to write. But, here I am.
I decided to come back to wish everyone a Happy Saint Patrick's Day weekend. I love the fun, green celebrations.
Yesterday I went to the Symphony's Celtic Music Celebration. Not my typical venue. The Symphony promised bagpipes and Irish dancers. I wanted the Irish and Scottish music to transport me to a happy place. It did not.
Saturday, September 16, 2017
Here is an update from his most recent Dr. appointments. His AZ Psych was hard for both Jordan and me. Jordan does not do well in his Dr. appointments. It's weird...he can be "normal" with me before the appointment. But once we get into the Dr. Office he goes to his "other place". Stress? Is it because we are talking about his condition? I don't know. He did fairly well with his Primary Care Dr.
But his AZ Psych was not great. When she talked directly to Jordan he mostly spoke gibberish. I don't know if any of you have experienced this. His "gibberish" is real words...but they don't make sense and they don't have context.
Friday, September 15, 2017
Overall we've had several REALLY good days. We continue to be seizure free. The potential side effects of the antipsychotic Rx appear to have subsided. His diabetes is under control. His insulin has been reduced to 10 units (from 42 units a year ago).
He still has bouts of sadness...but it doesn't appear to be as often as before.
When he does go into his "I'm not here" zone he is more and more difficult to manage. The good news is that it doesn't happen that often.